Writing 201: Trust

Writing 201: Trust

Today’s poetry assignment is to write a poem focusing on an element of trust.  If feeling brave to use an acrostic form of poetry and to dabble with an internal rhyme, the description of all of this is written by the Daily Post which you will find at the bottom of this post.

Writing 20: Trust

Writing 20: Trust

Trust

Zac is the name of my eldest son

and every day for him is so glum

Caged within seems to be the name of the game

Having Tourettes makes life insane

as slowly his twelve year old heart tears with pain

Anger and resentment build up inside

Rebelling at home helps quell the emotional tide

Yearning to just get off this ride.

© Justine Nagaur

~.~

Today’s prompt has forced me to face something that I have been meaning to write about for a while now, but not had the emotional energy to do so.

My son has Tourettes and has done so for a number of years, it waxes and it wanes in severity.  He doesn’t swear which is a misconception by many as only 10% of those with Tourettes do actually swear.  People with Tourettes have what we call tics, these are either vocal or physical in nature, ie a noise or a movement.

Tourettes is a hereditary neurological condition.  The symptons of Tourettes can ‘sometimes’ be reduced by strong medication or there are some therapies out there that have been said also to help with some sufferers.

This condition can just stop, it accelerates normally in one’s teens and generally continues.  There is no ‘cure’, only aids for those suffering to try and make life easier.

Over the last three weeks a new tic developed, which involved violent head shaking.  As you can imagine, doing this repeatedly causes immense pain, not only in the head, eyes but down one’s neck, back and so forth.  It means you cannot walk, it makes one dizzy and sick.

As a parent it has been a living nightmare to watch my child suffer emotionally and physically and sit there unable to do anything.  To see your child clutch their head in pain, crying and just wanting ‘it’ to stop.

For my son, this tic meant at first he had to have time off school, it mean’t he couldn’t ride his bike to school, it mean’t he couldn’t concentrate properly, it mean’t he had to face the usual school bullies who would have something ‘new’ to focus on.

To me, he is brave, oh so brave, to face the barrage of bullying that he has done so over the years.  I am proud of him, even when he take his anger out on us because we are his ‘safe zone’, we are his area of ‘trust’.

Thank you for reading, writing this has been a little bit cathartic, Justine xx

~.~

The Daily Posts assignment description for today:

Your prompt: trust

Today’s word is trust: write a poem in which you address, reflect on, or tell a story about the feeling of trusting or being trusted by another (person, animal, object, potted plant…). Or about distrusting them (or not being trusted yourself).

Today’s form: acrostic

Acrostics at a glance:

  • An acrostic is any poem in which the first (or last) letters of each line combine to spell out a word or a phrase, or follow the order of the alphabet.

Today’s (totally optional) form, the acrostic (ahc-RUS-tic), highlights the fact that poetry, at heart, is wordplay — it’s language playing tricks on your readers. Acrostics have been around for millennia: they’re a creative way to give order and convey multiple meanings at once while staying fairly subtle.

Today’s device: internal rhyme

Photo 101: Rehab

Photo 101: Rehab

Luciles Photo Rehab 101

 

~.~

  47 comments for “Writing 201: Trust

  1. February 18, 2015 at 12:15 PM

    Expressive. I’m going to leave it at that, saying anything else is not required. Thanks for sharing your son’s condition, so many people need to know so much more. More power to him and to you! Mine’s a very special post today…
    https://cupandchaucer.wordpress.com/2015/02/18/writing201-trust-acrostic-internalrhyme-birthday/

    Like

    • February 18, 2015 at 12:54 PM

      thank you, these assignments always surprise me in what they end up invoking. thank you for sharing yours, i took a peek, very special x

      Like

  2. February 18, 2015 at 12:53 PM

    I salute your courage and strength. An inspiration.

    Liked by 1 person

  3. February 18, 2015 at 1:00 PM

    Oh Justine, this is a very hard post to read, you are very brave to write hear about this condition suffered by your son, and by you and your family. My thoughts are with you.

    Liked by 1 person

    • February 18, 2015 at 1:00 PM

      here — of course not hear….

      Liked by 1 person

    • February 18, 2015 at 1:16 PM

      Thank you Andy, it was good to write it in a way as I have wanted to write a post for the last couple of weeks but you know it’s that feeling if you start the floodgates might open and I couldn’t handle that and back when it was at its worst the post might have been written quite erratically. Writing a poem has been easier in a way and being able to balance it with what is going on x

      Liked by 2 people

  4. February 18, 2015 at 1:21 PM

    Trust – thank you for trusting us, your blog’s audience, with something so personal. I was going to say, “I like the poem,” but that sounds a little heartless. How about, “You did a great job with the poem” and you even made it acrostic.

    I’m sure it’s difficult for both of you. If the physical problems weren’t enough, he shouldn’t have to face the bullying as well. I don’t understand bullying at all and I can’t fathom how someone could bully a person for a physical ailment. I’m sure Zac is brave, but I think you are brave too.

    Liked by 1 person

    • February 18, 2015 at 1:50 PM

      thank you for your kind words. He is the bravest and I think people, especially children use the ignorance and from this borne intimidation almost to pick on things they don’t understand because it perhaps frightens them a little in ways that they could be in that situation. I of course don’t say that to say it is alright, because it isn’t. The school has a certain amount of responsibility in educating children in all sorts, but its a state school and big and well these things get pushed to the side x

      Like

      • February 18, 2015 at 2:28 PM

        You’re welcome. I’m sure your blogs are a safe haven where you can always show that smiling, cartoonish face in your header and avatar. Of course we all know a much more complex person lies behind, a human, not a cartoon 🙂

        Like

  5. February 18, 2015 at 1:23 PM

    I commend you for your bravery and selflessness to open the floodgate.
    Your son exemplifies well that if he can, we should live with our big or small problems, and also try to count on our strength and supporting mechanisms around us.
    He’s a brave boy and has a precious mother.
    My respect.
    Love to both of you.

    Liked by 1 person

    • February 18, 2015 at 1:48 PM

      awe thank you Lucile you made me brim a bit but safely contained and in a good way, not a sad way it is nice to have others support. He is my cherub….i am lucky to have my boys no matter what, we will conquer all hehe x

      Liked by 1 person

      • February 18, 2015 at 9:27 PM

        Nothing to thank me for but you. You’re a special and adorable human being. Your strength is an inspiration. With you they will conquer the world. Xxx

        Liked by 1 person

  6. February 18, 2015 at 1:51 PM

    Wow Justine, such a burden to carry – a very powerful and moving poem and behind the scenes look at what your sons’ daily living is like. I’m sorry for you and your beautiful son, I hope one day they can find a way to manage the disease so he can have a normal life.

    Like

  7. February 18, 2015 at 2:20 PM

    This post, the story of your song just inspired me. I thought I had a bad day, after reading this, it seriously was nothing. Your boy is strong! And I wish him an easy journey. ❤

    Like

  8. February 18, 2015 at 4:09 PM

    There is power in prayer. Pray for strength and guidance. Know that your prayers will be answered. Bless you and your son.

    Like

  9. February 18, 2015 at 6:22 PM

    I have a dear friend with Tourettes Syndrome. He has many tics that were until recently controlled by medications. They no longer work well and the newer medicines did not work for him – side effects. His transition went pretty well, but he has a movement similar to your son’s where he throws back his head. It’s hard on his neck. We have had may conversations about his condition. He is a kind loving and very intelligent person. He is also someone I admire. Thank you for sharing your story. Peace to you and yours.

    Liked by 1 person

    • February 19, 2015 at 3:35 PM

      Yes thats reall hard on his neck, hopefully he gets massages etc. i have tried acupressure for my son tohelp with the muscle pains from it all. Thank you for your lovely words x

      Like

      • February 19, 2015 at 3:46 PM

        He does massage, now that you mention it. Thank you again for sharing.

        Liked by 1 person

  10. February 18, 2015 at 11:47 PM

    Woot Woot, bravo kiddo!! I only noticed the internal rhyme thingee after I wrote my poem but that’s okay. It flowed so nicely, Justine!! And your post is very important to inform more people about this syndrome.

    Liked by 1 person

    • February 19, 2015 at 3:31 PM

      Thank you glad you liked it, it was good to finally write about it, felt cathartic xx

      Like

      • February 19, 2015 at 4:48 PM

        I will look to see when Tourettes Syndrome awareness week is here in Canada so I could have you as a parent (which IS an expert) and a friend of mine and former colleague who has Tourettes S.

        Like

  11. February 18, 2015 at 11:48 PM

    Well, it sounds like your son has a supportive mom in his corner!

    Liked by 1 person

  12. February 18, 2015 at 11:49 PM

    Reblogged this on Stop the Stigma and commented:
    A great post creating awareness on Tourettes Syndrome by a very articulate and poetic parent!

    Liked by 1 person

  13. artseafartsea
    February 19, 2015 at 12:09 AM

    Beautiful poem. I wish you and your son much happiness in your journey through life.

    Liked by 1 person

  14. February 19, 2015 at 1:30 AM

    Wow, Justine. How beautiful! Such strength and sadness. Well done!

    I agree with you about writing, too. Though painful, it IS cathartic!

    Liked by 1 person

  15. Jen
    February 19, 2015 at 2:37 AM

    This is such a heartfelt, painful write, Justine — I feel so bad for poor Zachary — and for you too, having to watch. It breaks my heart. Being twelve is tough enough as it is … without having this on top of it.

    It’s a well-written poem, Justine — and the internal rhyme really holds it all together. 🙂 And I love the photo. 🙂

    A brave write — thank you for opening up to your readers — and for having the strength to pull it into a poem.
    [hugs]

    Liked by 1 person

    • February 19, 2015 at 3:29 PM

      yes 12 is so hard, hormones beginning to rage and peer pressure and all that. I think he is increcible, dealing with this day in day out at a big comprehensive school. It’s nice to get such a positive reaction to opening up x

      Liked by 1 person

  16. February 19, 2015 at 2:53 AM

    Justine, you are just as brave as your son if not braver. Thanks for sharing this special personal story; I had never heard of this condition before but as a parent it sounds pretty scary. Sending hugs from my heart to yours.

    Liked by 1 person

    • February 19, 2015 at 3:28 PM

      awe thank you for such lovely words. many people don’t really know much about it at all, and it’s a hard one to understand when you are in the midst of it too, but we are learning and trying to help him as much as we can in the best way possible x

      Liked by 1 person

  17. February 19, 2015 at 6:20 AM

    I am so glad you shared this information with all of us. You deserve all the support you can get. I had no idea you were dealing with such a huge problem with your son in addition to your own pain. I admire you so much.

    I’m sorry your son is having to deal with this load. You described the pain from the head shaking so vividly. I’m glad that he has you to walk this journey with him.

    Liked by 1 person

    • February 19, 2015 at 3:27 PM

      thank you for your lovely words Karuna. His most recent tic has subsided a little but we are on the waiting list to see a specialist at great Ormond Street. I do worry about how he will cope when is older and work etc, but I guess I am wrong to think that way and think just about now but its hard when you have kids not to worry about when you might not be here and that isn’t meant to sound morbid x

      Like

  18. February 19, 2015 at 2:27 PM

    This is so wonderfully touching Justine. Very well done!

    Liked by 1 person

  19. February 19, 2015 at 5:10 PM

    You were right, this on is a more on the emotional side. But I’m sure there are also bright days, that shine out the dark one 🙂

    Like

Comments are closed.

%d bloggers like this: